Wednesday, September 30, 2015

You can get through TSA Security Clearance at the Salt Lake City airport without a Driver's License

Question now is, can you get through TSA at the Florida airports
without a driver's license?

Adam lost his wallet yesterday.  He knew at 8:00 a.m. his wallet
was missing and that today at 11:00 a.m. he was flying to Florida
for Anthony's Make a Wish trip.

He didn't go get a Driver's License so he could get on the plane.
Further, he didn't find his birth certificate so he could get his
Driver's license.

Late last night he found an old expired UVU photo student ID.
He found an online copy of his current BYU photo student ID.
After they left, 30 minutes late, Daddy found Adam's "old"
expired Driver's License and a current employee badge from
BYU when Adam worked in Physical facilities.  I sent him
photos of those.

At any rate if you have a make a wish child the let you on the
airplane.

Acceptable Forms of Identification
All travelers flying on a domestic flight must present a photo ID issued at the state or federal level, such as a driver's license, military ID or United States passport. In addition to these commonly used forms of identification, passport cards, trusted traveler cards (such as the NEXUS, SENTRI and FAST cards issued by the Department of Homeland Security), border-crossing cards, Native American tribal ID cards, airline or airport photo ID cards issued in compliance with TSA regulations and transportation worker ID credentials also are acceptable forms of identification.

Lost or Forgotten ID
A lost or forgotten photo ID does not mean that a passenger will be unable to board his flight. The TSA allows passengers arriving at the security checkpoint without appropriate identification to still pass through the checkpoint, as long as they can provide personal information that can be matched with that found on public databases. However, these travelers may be required to undergo additional screening. In the event that a passenger's identity cannot be verified, he will be unable to pass through the screening area.
Now in a separate issue.  Adam's wallet is still missing.  It contains
charge cards, debit cards, BYU photo ID, and current Driver's license.
And Adam is in Florida-- or will be shortly--  he is NOT in
Utah to work on fixing this.




Sunday, September 27, 2015

2015 Salt Lake City CureSearch Walk September 26, 2015 - Salt Lake City, UT

The Utah Childhood CureSearch Walk was held 
at Sugar House Park 1300 East 2100 South to 
celebrate and honor children from the Salt Lake City 
area who have been affected by children's cancer.

September is Childhood Cancer Month and this walk
is the BIG event for the month.  Primary Children's
Hospital hand Wacky Warriors participated
in the event.  Wacky Warriors supports research organizations
dedicated to childhood cancer and outdoor adventure camps for
young adults with cancer.

It would be really nice if we could garner a larger team for Anthony
by the time he is old enough to remember.  2016 Anthony will
still be getting daily chemo.  2017 he will celebrate the end of
his chemo.


Face painting was free, and there was a huge line.
Noah at the end of the walk.  He was running.  Adam, Millie, and
Anthony got separated and didn't end the walk together.  Adam
was ALMOST last, but Anthony was still
walking.

Anthony on the walk

Anthony on the stage after receiving his medal.
All these children have cancer.
White Balloons launched in memory of children who have died from cancer.

Sunday, September 20, 2015

Energy Drinks May Be Linked To Traumatic Brain Injuries. Sep 20, 2015. Kathleen Lees k.lees@scienceworldreport.com

Previous studies have shown that energy drinks can be particularly dangerous for your cardiovascular health. Yet a new study published in the journal PLOS ONE shows that they may also increase the risk of serious damage to the brain.
"We've found a link between increased brain injuries and the consumption of energy drinks or energy drinks mixed with alcohol," Dr. Michael Cusimano, a neurosurgeon at St. Michael's Hospital, said in a statement. "This is significant because energy drinks have previously been associated with general injuries, but not specifically with traumatic brain injury."
During the study, which was conducted at St. Michaels hospital in Canada, researchers conducted a survey that was given out to more than 10,000 middle and high school students' ages 11 to 20 years old in Ontario in 2013.
The participants were asked about their energy drink consumption and if there had been an instance in which they had experienced a traumatic brain injury (TBI), meaning if they had sustained a blow to the head that left them unconscious for longer than 5 minutes and/or resulting in hospitalization for overnight or longer.
Findings revealed that 22 percent of the students said they had experienced a TBI, while 6 percent said they had a TBI in the last year, most of which happened while participants were playing sports.
"It is particularly concerning to see that teens who report a recent TBI are also twice as likely to report consuming energy drinks mixed with alcohol," Dr. Robert Mann, senior scientist at the Centre for Addiction and Mental Health in Toronto, said. "While we cannot say this link is causal, it's a behavior that could cause further injury and so we should be looking at this relationship closely in future research."

Saturday, September 19, 2015

GENOME SEQUENCING Definition


Genome sequencing is figuring out the order of DNA nucleotides, or bases, in a genome—the order of As, Cs, Gs, and Ts that make up an organism's DNA. The human genome is made up of over 3 billion of these genetic letters.
Today, DNA sequencing on a large scale—the scale necessary for ambitious projects such as sequencing an entire genome—is mostly done by high-tech machines. Much as your eye scans a sequence of letters to read a sentence, these machines "read" a sequence of DNA bases.
A DNA sequence that has been translated from life's chemical alphabet into our alphabet of written letters might look like this:

That is, in this particular piece of DNA, an adenine (A) is followed by a guanine (G), which is followed by a thymine (T), which in turn is followed by a cytosine (C), another cytosine (C), and so on.


Genomic Sequencing May Benefit Some Childhood Cancer Patients. September 2, 2015.




For some pediatric cancer patients with relapsed or refractory cancer, extensive genetic analysis can open up new options. according to research published in the Journal of the American Medical Association.

The findings are based on 91 pediatric cancer patients at Mott Children's Hospital who were out of standard treatment options. Rajen Mody, M.B.B.S., a pediatric oncologist at the University of Michigan C.S. Mott Children's Hospital in Ann Arbor, and colleagues analyzed each child's genetic blueprint, including DNA and RNA from their tumors and from healthy tissue.
Mody's team found that 46 percent of the children had a genetic finding that could potentially be acted upon. Physicians were able to take that action for only some patients, though -- including 14 children who started a new therapy, the team reported.
Those children were placed on recently developed, targeted cancer drugs. Overall, nine of the children responded, with either a partial or complete remission.
On the surface, those numbers might not seem very encouraging, Mody said. "But these are the hardest of the hard cases. They've gone through all the tests and the treatments we have," he told HealthDay.
"These are the children for whom we haven't seen any real improvement in outcomes in the past 40 years. This offers some hope that we'll be able to treat these children in a more personalized way."
One author disclosed serving on the scientific advisory board of Paradigm Diagnostics.
Reference
Mody RJ, Wu Y, Lonigro RJ, et al. Integrative Clinical Sequencing in the Management of Refractory or Relapsed Cancer in Youth. JAMA. 2015. JAMA. 2015;314(9):913-925. doi:10.1001/jama.2015.10080.

Cancer Therapy Advisor

Cure Search Genomic Sequencing

Wednesday, September 16, 2015

Marilee's Latest Post on the condition of her boys. . . . .

I find it phenomenal  that Marilee has TWO children with the same disease and they
are the ONLY ones in the entire state of Arizona that have it.

Adam and I debate regularly how many children in the world have the
same cancer as Anthony: Acute Lymphoblastic Leukemia on the B-cell.
Adam thinks this is extremely rare and anything that indicated the
above cancer geographically would violate their rights to privacy.


Sept. 2 - Appt. with Biochemical Geneticist - Today I drove Eli and Evan to Phoenix for an appointment with Dr. Alec. (Brad was going to come with me, but he ended up having to go to work, so I was on my own.) Dr. Alec is the biochemical geneticist who diagnosed the boys one year ago. Dr. Alec has become more and more interested in researching and treating children with different enzyme disorders by Direct infusion into the brain (probably through spinal tap). So I told him about the research that is being done right now with GM1. And how they're hoping to have clinical trials within the next few years. He hopes that if they do figure out the technology that it could implemented here in Phoenix to treat children. He believes that Eli and Evan are the only ones in Arizona that he knows about with the disorder. He hasn't heard of anyone else in Arizona and he thinks he probably would have. But it's possible there might be more. I gave him an update on the boys and gave him a more full history about Evan since he never got that from us. I told him about Minnesota, at least what I could remember. And about the clinical trial with miglustat. He said it seems as if we have been looking into every possible road and encouraged me to reach out to NIH if I felt so inclined. He told me he would stay updated on any of the latest with the research going on and GM1 and contact me if he hears of anything. He will also try to sit down and decide if he thinks they're more close to the late infantile or the juvenile type. Not that it will make any difference or even really tell us anything. But might be helpful to know. It was a long day of driving and a long appointments, so the boys weren't too happy. But we got through it and it was good and I'm glad that we were able to go. The boys after our appointment in Phoenix, Eli had no pants on because I had to change his diaper during the middle of the appt.! Both had incomplete foot wear by the end and were very tired!   

Marilee Burdetts


This is a link to Marilee's blog that I took this from. I am too tired to try to change
it so it doesn't look like this.